Friday, May 29, 2009

Well it is 8.15pm, I have been up since 8am after just 4 hrs sleep. I am really quite sore, aches and pains. I said that I would go and see a friend today which I did but i feel I may be in bed for a few days. This happens a lot, I go out one day and then spend the next 2 weeks feeling unwell. Unable to move. I am supposed to go out tomorrow but I am not sure if I can. I have bought some frozen pizza's for dinner as I don't want to have to cook. I a,lso got some A. Vogel Atro Bath-Oil, which I find soothes my pain for about an hour. Which is a long time for someone in pain 24hrs a day. I hope that if you are reading this it is not because you suffer from this condition as it is such a horrible illness to have, I wouldn't wish it on my worst enemy.

Friday, May 22, 2009

It is 1.45am, I am in bed, unable to sleep, as usual. I started a menstrual period yesterday and I am very heavy and it is very painful. With that and my other symptoms I am in agony. I have been taking 3 ibruprofen tablets and 4 codeine phosphate (60mg) a day for the pain and they're not touching it. I also take 3 mebeverine tablets a day (for IBS), 8 tranexamic acid and 3 mefinamic acid tablets a day for bleeding and 1 citalopram for depression. It seems that the Dr's don't know what causes my problems so just stick me on various tablets. I meant to go to the GP today but I was unable to walk so couldn't. I feel exhausted but can never sleep, and when I do, its never for long. I wish so much I could have a full nights sleep. Or wake up in the morning energised. Or wake up and not be stiff or in pain. But every morning I wake up the same and I wonder how long this will last. Surely it can't last forever. Although it's already been a number of years and I feel it will be lasting forever. I was very tearful earlier, everything gets on top of me every so often, then pain and fatigue, the depression not helping. I have also developed mouth sores today, which I don't think I have had before. After checking the internet, I found it's another symptom of Fibromyalgia. The problem I see to have is that the pain is on the inside and people can't see that I am hurting. I feel that it is all in my head but then sit and think well this pain is deffinatly real! It seemed like a good idea when I thought about starting a blog, however with fibro-fog it is difficult to concentrate and this takes a fair bit of concentration. So I apologise if I don't write as often as I maybe should. I will write when possible.

Tuesday, May 19, 2009

Hello, I will tell you about my symptoms and how they affect me in my everyday life. I have been suffering with this strange illness for a few years, shortly after suffering sexual abuse and rape. The Dr's have referred me to several specialist's and I have had lots of tests. All of which have come back clear, the doctor's don't know what is causing my problems and how to treat me. My symptoms are:
  • Widespread Pain
  • Chronic Fatigue
  • Migraines
  • Seizures
  • Weight Loss/Gain
  • IBS
  • Incontinence
  • Sensitivity to Weather, Lights and Odours
  • Heavy and Painful periods
  • Morning Stiffness
  • Nausea
  • Dizziness
  • Depression
  • Fibro-Fog
  • Insomnia

There are other symptoms but I can't remember them at the moment so I will add to the list in due course.

I believe that I have a condition called Fibromyalgia however my GP doesn't believe that this condition even exists, so I have a slight problem there. I am unable to put my case to the GP as I am generally too ill.

I am not sure how to discribe the above symptoms to you but I will have a go.

Widespread Pain - If you can imagine having aches in EVERY part of your body as though you did 10 rounds with Mike Tyson the day before. That is what my pain is like but 24hrs a day, 7 days a week, I don't even get bank holiday's off lol.

Fatigue - Have you ever felt not just tired but exhausted? Perhaps you were up all night with a sick child, or finishing an essay? Usually 1 or 2 good night sleeps solve this problem. For me it doesn't I feel constantly exhausted.

Insomnia - It takes me about 2 hrs to fall asleep and then I am likely to wake up at least once an hour during the night.

Seizures - I had a massive seizures in 1994 which left me in intensive care aged just 4 yrs old. I was diagnosed with Temporal Lobe Epilepsy but not treated for the seizures as I never had any more. I then started taking prozac in 2008 and the seizures started again I was having upto 5 a day. I stopped the prozac and the seizures continued. I had a 24hr EEG and the Neurologist told me that they are not epileptic. I still have seizures although only 3 or 4 week, because they are not epileptic they will not give me any tablets to control them.

Sensitivity to Weather, Lights and Odours - My symptoms are MUCH worse if it is cold or humid. Bright lights seem a lot brighter to me and I become quite unwell with flashing lights, probably more due to the seizures than anything else. I also have a heightened sense of smell. I can smell some things white a while before anyone else can. I can also smell odours that some people can NEVER smell.

Fibro-Fog - Hmmm, this is quite a difficult one to explain. There are many syptoms to Fibro-Fog, such as:

  • Mental confusion and fatigue
  • Loss of short-term memory
  • Inability to concentrate
  • Impaired thinking
  • Absentmindedness
  • Inability to recognize familiar surroundings
  • Disorientation
  • Inability to comprehend written or spoken words
  • Trouble with directions
  • Short attention span
  • Acquired dyslexia (includes difficulty speaking known words)

I was making a cup of tea and a bowl of cereal the other day I poured the cereal into the dish followed by the tea-bag (also into the dish), then filled the kettle with milk. I laughed about it but felt very sad about it as I feel that I am losing 'it'. Last night I put had a pan on the hob with vegetables in it and was putting the yorkshire puddings into the oven and yes you guess it. I put the yorkshire's in the pan of boiling water. I burst into tears...

When I am feeling upto it I intend to write in my blog and keep a diary of how I feel etc.

Thank you for reading.